Living An Unplanned Life

I have always been organized and never a procrastinating person. I had a plan for my career, my vacations, and my life. You can imagine my surprise when I received an invasive aggressive breast cancer diagnosis. Breast cancer was not in my plans. It wasn’t even on my radar. I was forced to open up my plan book and add a new chapter.

As breast cancer awareness month winds down I wonder how many other women felt like me? How many other families had to cancel vacations, alter their roles, or give up careers? How many other women added not a new chapter to their life but a whole new book as I did?

I never would have thought that my breast cancer diagnosis would lead me to a new career path. A life threatening diagnosis can bring out different responses in different people. For me the response was to look at this life plan I had and not just edit it but start fresh. Starting my own Sleepwear Company, http://www.haralee.com/ gave me a new path, purpose and career. To be able to be my own boss, to be able to do something that helps others and to be able to give back to charity is the new plan for my life.

Change is difficult but achievable. Change in health, family, career, and income can all cause stress to a well planned order life. The joy is taking the changes and making a fuller life. I wish all breast cancer survivors the joy of survivorship in their new lives.

The Power of The Pink T-Shirt

43,000 people joined together for the Susan G Komen Race for the Cure this Sunday in Portland Oregon. A beautiful sunny morning brought thousands touched by breast cancer a warm feeling of hope. Hope for the Cure, Hope for the Cause, Hope for the Healing. 43,000 people gave up their normal Sunday morning activities to show their support for curing breast cancer.

My company had a team again this year, Team Haralee. Team members are made up of survivors of breast cancer and the ugly stepsister of breast cancer, ovarian cancer, and their families and friends. Our Donation goal, above the $25.00 entrance fee, was met this year!

Survivors wear a pink commemorative T-shirt. Non survivors wear a commemorative white T-shirt. Watching a sea of pink and white T-shirts is a very powerful image. Special attention is given to pink shirt wearers. There was a survivor tent with special goody bags filled with socks and tea and shoelaces and coupons from National Komen sponsors for all survivors. Deference was given to pink shirted women. Survivors were sent to the head of the line for samples, even the line for the port-a-potties.

For a few hours at this special event the Power of the Pink T-Shirt is honored. Those participating with the Race for the Cure understand the physical, mental, emotional, and fiscal costs of survivorship and show their respect and love. It is a celebration and a memorial and a very powerful event. Oregon and Washington have the highest rates of breast cancer in the country. With a dubious honor like that, Komen was able to chase out 43,000 people to support the Race for the Cure. I just wonder why not 100,000 or 200,000 people? Maybe next year there will be a cure, or a cause.
We all hold on to the Hope.

Genetic Gene Breast Cancer Hope

A new drug for genetic breast cancer is showing promise. A small study in the UK with the drug Olaparib, from pharmaceutical company AstraZeneca, is showing promise in shrinking and stopping tumor growth.

Olaparib works by blocking a protein found in cancer cells with patients who have a BRCA-related breast cancer. What is very exciting is that the drug causes the cancer cells to die yet leaves healthy cells alone. This means the debilitating side effects of traditional chemotherapy would be drastically reduced.

Jews with an Ashkenazi heritage have a high incidence of BRCA related breast cancer. Those with the BRCA gene mutation have a 60% higher chance of getting breast cancer in their life time than those that do not carry the mutation. They also have a 60% increased risk of ovarian cancer. Up to 50% of people with the gene mutation do not have a family history of breast cancer largely because the gene can be carried by men who do not manifest the disease.

Andrew Tutt, the director of the Breakthrough Breast Cancer Research Unit at King’s College London, said preliminary results were “very promising”.
The drug has the potential as an early stage preventative treatment. Many women develop breast cancer not knowing they carry the gene. More studies are needed, but the general thought from the genetic breast cancer community is HOPE.

The Toughest Breast Cancer Survivor Dies

Can you imagine performing a biopsy on your self? What about diagnosing your self with breast cancer? Can you grasp what it must have been like to watch your tumor grow and not be able to get treatments? Dr. Jerri Nielsen lived through this as a physician at the South Pole, but passed away recently from breast cancer 10 years after she diagnosed herself.

You may have read her book that documented her ordeal, “Ice Bound: A Doctor’s Incredible Battle for Survival at the South Pole”. Or you may have seen the CBS Movie starring the fantastic Susan Sarandon. She was an adventurous woman working at a remote scientific station at the South Pole at age 47 in 1999.

When people die from cancer their obituaries or eulogies often state that they fought bravely against the disease. Dr. Jerri was the extreme fighter against the disease. Not many will have to go to the extremes she endured.
The breast cancer community mourns the loss of the toughest survivor ever, Dr. Jerri Nielsen-Fitzgerald.

The Truth about Breast Cancer

The truth about breast cancer is that it happens. No one knows the cause or the cure. The only known causes of breast cancer are too many birthdays and being a woman. Every woman is shocked when she hears that diagnosis. I know I was. I couldn’t understand how I could have a fast growing life threatening disease when I felt great. Not until I started my treatments did I feel sick.

Last week the NY Times ran a story with a teaser headline under the picture of an obvious cancer patient, “Non-smoking, vegetarian who exercised was shocked when told she had Breast Cancer”. This is a tough story for this woman because after treatments her cancer returned. For those of us familiar with breast cancer, that is what it does, it comes back. There is no cure for breast cancer.

If eating blueberries, flax seed, walnuts, broccoli and such, and daily exercise was really the preventive cure we would see a drop in breast cancer statistics. This is not the case. Cancer is not one disease. Breast cancer may not respond the same way as treatments for another cancer, and varies from individuals.

Researchers are always looking for funding from foundations and companies to find a cure. In 1971 Richard Nixon vowed that the United States would find a cure for cancer. 38 years later the Obama administration is vowing to look for cures. I am forever the optimist and would like to see a cure for breast cancer in my lifetime. This administration seems to understand the complexity of cancer and hopefully will make head way for cures or causes.

Early detection is great. Healthy life styles are wonderful. The truth however is there is nothing to insure you against breast cancer. Like life, no guarantees, warranties or do-overs.

Metastasis breast cancer, no longer a hasty death notice, is cancer that has spread to other parts of the body that can be treated as a chronic condition. Treatments are on going, meaning for the rest of the woman’s life. This is the status of the woman in the NY Times story. I wish her well.